Reverse Rett Matters newsletter

Reverse Rett Matters is a quarterly newsletter with all the latest research, healthcare, and fundraising updates.

To request a hard copy of Reverse Rett Matters, please fill in the form below.

You can also download the latest copy and previous Reverse Rett Matters further down the page.


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    Things you’ll find

    Our quarterly newsletter is a great way to stay up to date with the issues that matter to you.

    Each edition includes research updates via Q&As with clinicians or helpful summaries of recent papers related to Rett Syndrome research. The work of the CIPP Rett Centre is often featured, giving insight into how families benefit from participating in clinical research as well as helpful healthcare information.

    The newsletter also allows us to share with you the work we are doing and exactly where your donations go, as well as giving us the chance to spotlight our amazing supporters and share your inspirational stories with others.

    Details of upcoming informational and fundraising events can be found, along with key messages/links to videos from past events, helping you to stay as informed as possible.

    2021 Reverse Rett Matters

    2022 Reverse Rett Matters

    If there’s anything you would specifically like to see included in future editions of Reverse Rett Matters,
    please do get in touch – we are always open to your ideas.
    Please email


    • Local Race Events 2023

      Local Race Events 2023

      Reverse Rett and Run For Charity have partnered to give you access to 350+