Things you’ll find
Our quarterly newsletter is a great way to stay up to date with the issues that matter to you.
Each edition includes research updates via Q&As with clinicians or helpful summaries of recent papers related to Rett Syndrome research. The work of the CIPP Rett Centre is often featured, giving insight into how families benefit from participating in clinical research as well as helpful healthcare information.
The newsletter also allows us to share with you the work we are doing and exactly where your donations go, as well as giving us the chance to spotlight our amazing supporters and share your inspirational stories with others.
Details of upcoming informational and fundraising events can be found, along with key messages/links to videos from past events, helping you to stay as informed as possible.
