About us

Two runners push a child in a specialist buggy across a rainy race finish line during a charity fundraising event.

We’re a UK charity driving treatments and a cure for Rett syndrome into the lives of everyone affected.

 

Our vision

We want a world where children with Rett Syndrome are diagnosed quicker, earlier, and more effectively than they are right now. A world where much more is known about the condition and factors that affect progression. A world where at every stage of development, treatments are available to counteract its symptoms. A world where we ultimately deliver a cure and enable people with Rett Syndrome to lead free and healthy lives.

Young child wearing a floral sun hat and yellow dress sitting on grass in a colourful garden, looking at their hands.
Two people holding a charity award recognising the Rett Syndrome Research Trust UK.

Founded by parents

Reverse Rett was founded in 2010 by five parents who had each seen the devastating effects of Rett Syndrome up close. Together, we decided to do what we could to impact research into treatments and a cure. Fifteen years later, Rett syndrome gene therapy clinical trials are underway. Now we have more work than ever to do to bring these disease-modifying treatments for Rett syndrome home.