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Reverse Rett was founded by parents who understood first-hand the impact of living with Rett syndrome and the urgent need for progress. Over the past decade, that shared determination has evolved into a focused, professional organisation driving tangible change. Together, we’ve helped deliver over £10 million in research funding and continue to work towards a future where effective treatments — and ultimately a cure — are within reach.
“When Amber was diagnosed, I wanted answers — something to hold onto that could make things better for her and for others like her. Over time, I’ve learned that change comes from persistence, partnership, and belief in progress, even when it’s not as fast as we want it to be. Reverse Rett has always been about that — pushing forward with care, community, and hope for the future.”
Rachael Stevenson