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What We Do

 

what we do

Reverse Rett works to speed treatments and a cure for Rett Syndrome and related MECP2 disorders by funding research that will have a practical and positive impact on our children’s lives.

Founded by parents, our children are at the heart of everything we do.

About us

We're working to accelerate treatments and a cure for Rett Syndrome by funding the most cutting edge and innovative research projects worldwide. We fund scientists working to cure Rett Syndrome, those working to develop treatments that will improve...

What is Rett Syndrome?

Imagine a little girl who can’t speak, or play or use her hands; deteriorating throughout her childhood, losing the ability to walk, plagued by problems with eating, breathing and just being, until she is locked in to a body that doesn’t work. This...

UK Patient Registry

Reverse Rett holds the only current and accurate registry of UK patients with Rett Syndrome. The registry is a critical component of our work to deliver treatments for Rett Syndrome in the UK. It enables us to contact the families of registered...

Our research

Rett Syndrome research is making strides in understanding the underlying cause of Rett Syndrome, finding ways to treat symptoms and figuring out how to reverse the condition completely with the help of some of the world's best scientists.

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Newly diagnosed?

Reverse Rett holds the only current and accurate registry of children and adults with Rett Syndrome in the UK. Register now, so that we can contact you as and when we are seeking to recruit and inform patients about upcoming trials.