What We Do


what we do

Reverse Rett works to speed treatments and a cure for Rett Syndrome and related MECP2 disorders by funding research that will have a practical and positive impact on our children’s lives.

Founded by parents, our children are at the heart of everything we do.

About us

'A tiny charity, focused on science, founded on love.' In five years, we've sent  over $5 million of the funds you've raised to Rett Syndrome research.

What is Rett Syndrome?

Imagine a little girl who can’t speak, or play or use her hands; deteriorating throughout her childhood, losing the ability to walk, plagued by problems with eating, breathing and just being, until she is locked in to a body that doesn’t work. This...

UK Patient Registry

Reverse Rett holds the only current and accurate registry of UK patients with Rett Syndrome. The registry is a critical component of our work to deliver treatments for Rett Syndrome in the UK. It enables us to contact the families of registered...

Our research

Rett Syndrome research is making strides in understanding the underlying cause of Rett Syndrome, finding ways to treat symptoms and figuring out how to reverse the condition completely with the help of some of the world's best scientists.