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Our Professional Advisory Board

We really value the time, energy and resources our Professional Advisory Board commit to the effort to reverse Rett.

Dr Jatinder Singh MSc, PhD

Independent Medical Writing Consultant and Scientific Advisor

Daddy, husband and advocate of finding ways to improve the lives of children with Rett Syndrome. One of J’s great passions in life is writing and he has spent several years working as a Medical Writer for pharmaceutical companies and charities. As part of this role, he had overall responsibility for the regulatory and scientific writing of multi-centred randomised controlled trials in a number of different therapeutic areas ranging from Psychiatry, Oncology to Immunology.

More recently, he has worked as an independent Medical Writing Consultant and Scientific Advisor for a range of clients including those in the pharmaceutical and charity sector, providing guidance on all stages of a clinical trial from protocol development to final analysis and reporting of outcomes. He has also acted in a scientific advisory capacity for numerous clients.

J acts as a Scientific Advisor for Reverse Rett and through his knowledge and experiences is able to provide intellectual oversight into Rett Syndrome research and its potential translation from the bench to the bedside. Part of his motivation for working with Reverse Rett is to raise awareness for parents, families and their children. In Rett Syndrome, no single approach will be the same for every individual, however, he hopes his knowledge of Rett Syndrome particularly from a translational perspective will empower the public and patient community, and foster their understanding of this disorder.

Having three young children of his own, J has developed a particular fondness for Reverse Rett, its aspirations and vision, and joins us at a pivotal time in Rett research.

Stuart Cobb

Lab Head at The Institute of Neuroscience and Psychology College of Medical, Veterinary and Life Sciences, University of Glasgow

Stuart Cobb is a neurobiology specialist based at the University of Glasgow where he has worked in the area of Rett Syndrome research for a number of years. His lab studies the neurobiology of the disorder and is driven by a desire to find ways to treat Rett Syndrome. He is currently part of an international consortium developing gene therapy as a potential therapeutic approach in treating Rett Syndrome. Stuart received his scientific training in Glasgow, Oxford, Canada and Edinburgh. He has worked in the biomedical research industry and on collaborative projects with a range of pharmaceutical companies. He has promoted awareness of Rett Syndrome within the scientific and pharmaceutical business communities as well as through public engagement and Rett Syndrome family events.

Stuart hopes his knowledge of Rett Syndrome and of the global efforts aimed at finding treatments for the disorder can help Reverse Rett to develop their strategies for raising awareness, funding and scientific advocacy. 

To read more about Stuart's work in the world of Rett Research please click here

Thomas Carroll MB BCh BAO FRCSI (Neuro.Surg.) MD

Trustee

Thomas Carroll is a Consultant Neurosurgeon and Deputy Clinical Director of Neuroscience at Sheffield Teaching Hospitals NHS Foundation Trust, as well as a senate member of an NHS England Specialist Commissioning Clinical Reference Group and an 'expert' member of a National Research Ethics Service regional ethics committee.  He has a research interest in molecular neuro-oncology including new drug development for malignant brain tumours.

In addition, he is Chairperson of another national rare disease charity, Fanconi Hope Charitable Trust, has co-edited a national Standards of Care for the genetic disorder Fanconi Anaemia, and was instigator of the Fanconi Anaemia International Gene Therapy Working Group.

He is also currently Chair of the Board of Governors of a maintained special school in Sheffield.

Thomas has three children with disabilities; a daughter Katie with Rett Syndrome and two sons with autistic spectrum disorders, one of whom has undergone a bone marrow transplant for Fanconi Anaemia.

Adam Leah

Topaz Digital Media

Adam became involved with Reverse Rett at the first Reverse Rett London in 2010 and has worked at every event since. He also made the latest Reverse Rett video, 'What's not to love?'.

Part of a highly experienced new media design firm, Topaz Digital Media, Adam is always pushing at the cutting edge of what's new in digital media technology. 

Utilising all the software tools available from After Effects, Final Cut Pro, Photoshop, InDesign, Illustrator, Flash and Dreamweaver - Topaz produce rich video, websites, social media and print design that draw heavily on their background in broadcast television and live events. 

Adam & Topaz work with many blue chip clients on exciting projects within the online, motorsport, live events and broadcast sectors.

From presentations to broadcast commercials Topaz are small enough to spin on a six pence but experienced enough to make your project look a million dollars. 


 

James Seavers and David Moore

Founder, Code Guru and Design Ninja, Symphony Online

James founded internationally renowned Bristol and Swindon based, cutting edge web design company, Symphony Online in 2006.

When Reverse Rett Co-Founder, Rachael Bloom, was looking for a (very kind but also excellent) company to create a pro bono website for the newly forming charity, the elite, bespoke web development company naturally caught her eye. Rachael approached them for help building a website for Reverse Rett. Having been approached by charities in the past who had not committed fully to the process, Symphony asked Rachael to go away and learn about web development, web coding and how the web works. Three months later Rachael went back to see them having learnt the necessary skills and the construction of the website began. With two young daughters of his own, James felt a particular affinity towards Reverse Rett and since the very first day, James and fellow webdesigner, David have done everything they can to help the charity grow from strength to strength.

James and David have now designed, built and hosted two brilliant websites for Reverse Rett and are now working on a bespoke database to accomodate the rapidly evolving needs of the organisation. They continue to provide us all with invaluable advice and support.

James and David both live near Devizes in Wiltshire with their families.

Esther Marlow

Finance Director, Carmel Clothing

Esther Marlow is Finance Director of Carmel, an international clothing company that is based in London. She has held this role since 2002, following a successful career in the public sector.

Carmel began fundraising for Reverse Rett in order to support a colleague whose niece was diagnosed with Rett Syndrome. Esther’s personal commitment to the charity developed when she heard for herself about the impact of the condition on girls and their families. She says, “What blew us away was the integrity of the way the charity is run, the people involved, and the strength and hope they have. If you can help, you should.”

David Thompson, MA

Speaker, Trainer, Troublemaker, Coach

David became involved with Reverse Rett in 2011 when he hosted our first 'Strategy Day' for Reverse Rett's Board of Trustees. Since then his help and advice has been invaluable.

David helps leaders at all levels communicate more clearly, perform more effectively and inspire the people around them. With more than 20 years of experience in corporate communications and business management, David helps clients harness their resources for outstanding performance.

David began his career in communications with Ketchum in Washington D.C., and joined the company's Munich office in 1995. In London, David was a Director of the agency’s Corporate Practice Group. He later led a sponsorship consultancy, helping clients engage with arts and educational institutions.

David holds a BA in English Literature from Davidson and an MA in Shakespearean Theatre from Essex University. In addition to his work as a consultant, coach, trainer and facilitator, David is an experienced actor and director of Shakespeare's plays.

David founded Total Awareness Coaching in 2004 to help clients embrace the opportunities and responsibilities of leadership - at every stage of their careers. 

"Our doubts are traitors and make us lose the good we oft might win by fearing to attempt." -  Shakespeare
 

David Greatrex

David first came into contact with Reverse Rett whilst working as a financial analyst for an analytical consultancy and Visa Europe in London. Having led his company involvement with the charity, he contributed to fundraiser workshops and now advises on the use of data for enhancing revenue. Since London, David has worked as an business intelligence analyst for a number of companies in Warsaw, Poland.

David was educated at Cambridge University and is now due return to undertake doctorate research in cognitive science from where he will provide advisory business support to Reverse Rett.  Aside from work, he is a huge fan of music, psychology and golf!

Thomas
Carroll

Stuart
Cobb

James Seavers
David Moore

David
Greatrex

Adam
Leah

Esther
Marlow

Jatinder
Singh

David
Thompson MA