There are so many difficult symptoms in Rett Syndrome, that even fixing one, may in many cases, significantly improve the quality of life of the person struggling with that symptom.
Finding a drug, compound or procedure that improves one or more symptoms may be the quickest and most cost effective way to helping people with Rett Syndrome live better lives.
Reverse Rett are supporting the development of new treatments for managing symptoms in three ways:
1. By providing ongoing financial support to RSRT Clinical Trials of new potential treatments including Ketamine, Lovastatin and Copaxone.
You can read more about these trials on the RSRT website here. Just scroll down to Current Projects and click on the orange Clinical Trials & Studies tab.
2. By providing ongoing support for RSRT laboratory research aimed at downstream targets.
You can read more about these downstream targets on the RSRT website here. Just scroll down to Current Projects and click on the orange Downstream Targets tab.
3. By providing funding for the Centre for Interventional Paediatric Pharmacology and Rare Diseases Research Team at King’s College London. The CIPPRD team are working to manage the secondary symptoms of patients with Rett Syndrome with the use of exisiting and emerging medications, utilizing a new, innovative and comprehensive instrument to more accurately evaluate and assess a variety of data including physiological and behavioural in patients with Rett Syndrome.
You can read more about this work here.