Communication Passport

Loving someone with limited communication can mean that someone else caring for them can be greatly anxiety inducing because we want the people supporting them to care for them appropriately and for the person we love to be appreciated for who they are.

Below you can find a link to a template for a Communication Passport that was produced for an individual girl with Rett Syndrome.

The document provides a way for parents and carers to provide their valuable insight to professionals regarding your child, when you are not present.

You can complete your child’s details within the document and print so that you can send with your child to school, college day services etc.

 

Our special thanks to Catriona and Amy for enabling other families to benefit from their time and experience!

2018 Rett Communication Passport template

Latest news

  • What is gene therapy and how can it help people with Rett syndrome?

    What is gene therapy and how can it help people with Rett syndrome?

    September 2023   Emerging Gene Therapies Bitesize – Session 1 Reverse Rett CEO Rachael Stevenson
  • The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway. 

    The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway. 

    Much is going to be required of our very small, rare disease organisation at
  • Neurogene doses first paediatric patients in US clinical trial of NGN-401 gene therapy 

    Neurogene doses first paediatric patients in US clinical trial of NGN-401 gene therapy 

    November 30th 2023-Neurogene has announced today that they have dosed the first two female