Reverse Rett LEAP Education Day 

At this one-day conference held in our home city of Manchester, we’ll be sharing all the latest information about gene therapy clinical trials and emerging treatments for Rett syndrome. We are delighted to say that the program is now as SOLD OUT as a free conference can be. However, if you are keen to join and haven’t managed to get a ticket, you can still be added to a waiting list. Email [email protected] for more information. If there is enough interest, we will also arrange filming and share the sessions digitally afterwards, so please let us know if this is important to you! 

When: June 1st, 2024, Time: 09:00-16.15 

Where: The Brooklyn Hotel, Manchester 

LEAP Education Day 

LEARN EMPOWER ADVOCATE PREPARE 

At this one-day, in person conference, we’ll be hearing from the doctors and pharmaceutical companies running current clinical trials of potential treatments for Rett syndrome. Topics we will cover include understanding gene therapies, including the status of current clinical trials and what’s involved in obtaining UK funding approvals once a given therapy is demonstrated to be safe and effective through clinical trials. 

We’ll also be holding sessions sharing the latest information and best practises regarding keeping our people with Rett as healthy and safe as possible until disease modifying treatments become available. 

Confirmed speakers: Dr Dan Lumsden, Prof Santosh, Dr Jay Shetty, Dr Aimee Donald, John H. Sharpe  

If you have any questions feel free to contact [email protected]