Support Us

Change is not only possible, but within reach. Your investment yields tangible results.

Rett Syndrome research is moving fast but not fast enough for people living with Rett Syndrome and their families. We need you to join us and help turn the promising research into a cure for children and adults living with Rett Syndrome today. Please get involved in any way you can and play your part in making Rett Syndrome history. There are so many ways to get involved.

Click here to set up a regular donation now

Fundraise

Whoever you are, whatever you do, you can make a difference and help speed treatments and a cure for Rett Syndrome. Take part in a run, ride or climb a mountain. Hold a cake bake, quiz night or formal dinner. Be creative and do something that grabs people’s attention….sitting in a bath of beans in your local town centre would do it.

Set up your free online giving page here.

Donate

Set up a monthly donation in honour of someone you care about. Find out if your workplace has a matched funding scheme in place, which can allow you to double your impact.

Shout about us

Galvanise the troops! If your school or work place supports a charity then push Reverse Rett forward. When people hear about the disorder, the effect on families and the potential for treatment, they tend to stop and listen…Shout it from the rooftops!

Workplace matched funding

Find out if your workplace has a matched funding scheme in place, to allow you to double your impact on Rett Syndrome research.

Leave a gift in your will

Leaving a gift in your will is quick, easy and can make a major difference to the fight against Rett Syndrome for future generations.

“I realised many years ago that if we were ever going to make real progress in Rett Syndrome research it would have to be led by families affected by Rett Syndrome. Almost all of the money raised for Reverse Rett has come from parents, their families, friends and connections. We have made huge progress since the reversal experiments in 2007; this was the breakthrough that led me to start taking on challenges to speed up the research. With clinical trials underway it really is a matter of time before treatments are available. We need you to join us, to help make this possibility a reality. What can you do? Who do you know that can help? Please get in touch anytime to brainstorm ideas of how you can get involved.”

Andy Stevenson

Co-founder, Trustee, Fundraising Manager

Latest news

  • What is gene therapy and how can it help people with Rett syndrome?

    What is gene therapy and how can it help people with Rett syndrome?

    September 2023   Emerging Gene Therapies Bitesize – Session 1 Reverse Rett CEO Rachael Stevenson
  • The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway. 

    The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway. 

    Much is going to be required of our very small, rare disease organisation at
  • Neurogene doses first paediatric patients in US clinical trial of NGN-401 gene therapy 

    Neurogene doses first paediatric patients in US clinical trial of NGN-401 gene therapy 

    November 30th 2023-Neurogene has announced today that they have dosed the first two female