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fighting to reverse Rett

Our Mission

Reverse Rett works to speed treatments and a cure for Rett Syndrome and related MECP2 disorders by funding research that will have a practical and positive impact on our children’s lives. We fund research from basic science to clinical trials and work to facilitate the translation of this work into clinical applications for people with Rett Syndrome and related MECP2 disorders.

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latest fundraiser post

Fundraise

Surrey Mirror : Devoted parents inspired by their ‘little angel’ raise more than £30,000

Devoted parents have raised more than £30,000 for a charity – inspired by their "little angel" daughter.

Lily Hall has Rett syndrome, which leaves her "locked" inside...

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latest fundraising event

  • 27
    Mar

    Snowball get together 4 Rett

    Hold your own Snowball Get Together 4 Rett. You won’t only help raise awareness of Rett Syndrome within your community, you’ll also have the opportunity to raise the...

  • 28
    Mar

    15 for 15: The Force of Friends

    Can you challenge yourself to recruit 15 friends to make a difference to girls and women suffering with Rett Syndrome in 2015? 

    There are hundreds of ways to raise...

  • 29
    Mar

    2015 Cheshire Cat

    Team Ciara who will be preparing for their Port2Port Challenge at the Cheshire Cat

    Join Team Ciara at their first race of 2015 in Crewe at the Cheshire Cat. There are...

  • 09
    May

    Just Walk 2015

    The 60k walkers led by Greg McKeague at Just Walk 2014

    For the third year running Just Walk stalwart, Greg McKeague, is organising a Reverse Rett Team for this year's...

  • 10
    May

    Great Manchester Run

    Join Team Reverse Rett at the Great Manchester Run.

    Europe's biggest 10K running event has seen more than a quarter of a million enthusiastic runners take to the...

Events

see our upcoming events and how you can get involved.

Upcoming events

27
Mar

Snowball get together 4 Rett

Hold your own Snowball Get Together 4 Rett. You won’t only help raise awareness of Rett Syndrome...

read more
28
Mar

15 for 15: The Force of Friends

Can you challenge yourself to recruit 15 friends to make a difference to girls and women suffering...

read more
29
Mar

2015 Cheshire Cat

Team Ciara who will be preparing for their Port2Port Challenge at the Cheshire Cat

Join Team Ciara...

read more
24
Apr

The Text Ellis Campaign Anniversary Ride

On April 24th Richard Page and friends will be cycling 130 miles from Leicester to Burnley in the...

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Social hub

Latest News

02
Mar

More news about Trofinetide

By Rachael Bloom

Neuren have announced today (March 2nd 2015)  that their FDA application for...

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25
Feb

Treating Rett symptoms with existing medications: a targeted approach

There are many obvious difficulties facing people with Rett Syndrome. Not being able to speak,...

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latest tweets

Equilibrium and the brain - public lecture by key #Rett syndrome researcher via @reverseRett edinburghneuroscience.ed.ac.uk/edneuroseminar…

Eduardo Reyes03/03/2015

The #snowball4MECP2 is still rolling in Dundee Lets keep it going #4Blake reverserett.org.uk/events/get-tog… pic.twitter.com/40wPAsVULi

Reverse Rett02/03/2015

@rarediseaseuk #rettsyndrome affects 1:10,000 so putting it on action list will help many patients at once for a #RareDisease @reverseRett

Rachael Bloom27/02/2015