fighting to reverse Rett

Our Mission

We are a parent-driven charity working to accelerate treatments and cures for Rett Syndrome and related MECP2 Disorders. Since our inception in 2010, we've delivered over £2 million of the funds you've raised to research.

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latest fundraiser post


Manchester Evening News : Charity event for Reverse Rett to be held at Altrincham Market

Nick and Jenny Johnson's daughter Kitt, six, suffers from brain condition Rett Syndrome.

The parents of a young girl with a rare neurological condition are aiming to...

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latest fundraising event


see our upcoming events and how you can get involved.

Upcoming events


Snowball get together 4 Rett

The Snowball 'Get together 4 Rett' is now well underway.  By holding a coffee morning, afternoon...

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Christmas Carol Concert

There will be a carol concert on Thursday 4th December 2014 at Bonnyrigg Parish Church in...

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The Big Give Christmas Challenge

The Big Give Christmas Challenge 2014 opens at 10am on December 4th. Up to £70,000 of donations to...

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Hope for Eliza Ball

The 'Hope for Eliza' Ball will be held at the McDonald Marine Hotel in North Berwick on June 5th...

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Social hub

ReverseRett Blog


Thank you is not enough: 5th Reverse Rett London event raises over £120K for Rett research

Dear Friends,

On Friday 7th November 2014, a roomful of people gathered at the Hotel Russell with...

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MBNA General Foundation award a £5,000 grant for P2P

MBNA employee, Gayle Fowler with daughter, Ciara and son, Michael

Reverse Rett would like to thank...

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latest tweets

#RhettForRett @reverseRett @MovemberUK Charity Market this Sunday! Festive, food, drink & live music @altrinchammkt pic.twitter.com/Pf81Krt46S

Altrincham Market26/11/2014

The 2014 #TBGchallenge kicks off at 10am on 4th December. Double your donation at thebiggive.org.uk on 4th, 5th & 6th December.

The Big Give25/11/2014

7 days 2 go till @BigGive Please dont donate before 10am on Dec 4 or it wont get DOUBLED #TBGChallenge #doitfordouble pic.twitter.com/rsl2vC7CwL

Reverse Rett26/11/2014