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Reverse Rett is a patient advocacy and research organisation focused on delivering treatments and a cure for Rett Syndrome to everyone affected.

 

We’re dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

Not only do we fund laboratory and clinical research into treatments and a cure, we connect, empower and inform people whose lives have been impacted by this devastating condition.

Change is within reach

We fund laboratory and clinical research into Rett and MECP2 Duplication Syndrome, maintaining pressure and momentum for treatments and a cure.

Your support matters

We’re raising funds to fulfil both our ongoing U.K. clinical research commitment and the RSRT research program focused on next generation gene therapies. We can’t do it without you.

Living with Rett Syndrome.

Stay informed with practical information and resources which can help keep children and adults with Rett Syndrome as healthy as possible until we have effective treatments for the condition.

Making change happen

We’re focused on delivering treatments and a cure to children and adults with Rett Syndrome in the U.K. Our small but national team raises funds for research, supports clinical trials and manages the Rett Registry U.K.

 

 

Latest news

  • New Rett Registry UK launching soon!

    New Rett Registry UK launching soon!

    Reverse Rett started the Rett Registry UK back in 2014. This year, we have
  • Elsie’s Golf Day

    Elsie’s Golf Day

    On 28th August Kate and Neil Buckley held their third consecutive annual Golf Day
  • Bitesize is Back!

    Bitesize is Back!

    September sessions Friday 17th September 10am: Rachael and Andy Stevenson discuss the logistics for

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