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Reverse Rett is a patient advocacy and research organisation focused on delivering treatments and a cure for Rett Syndrome to everyone affected.

 

We’re dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

Not only do we fund laboratory and clinical research into treatments and a cure, we connect, empower and inform people whose lives have been impacted by this devastating condition.

Change is within reach

We fund laboratory and clinical research into Rett and MECP2 Duplication Syndrome, maintaining pressure and momentum for treatments and a cure.

Your support matters

We’re raising funds to fulfil both our ongoing U.K. clinical research commitment and the RSRT research program focused on next generation gene therapies. We can’t do it without you.

Living with Rett Syndrome.

Stay informed with practical information and resources which can help keep children and adults with Rett Syndrome as healthy as possible until we have effective treatments for the condition.

Making change happen

We’re focused on delivering treatments and a cure to children and adults with Rett Syndrome in the U.K. Our small but national team raises funds for research, supports clinical trials and manages the Rett Registry U.K.

 

 

Latest news

  • AMRC Best Practice Award

    AMRC Best Practice Award

    We’re delighted to announce that Reverse Rett has passed the 2020 Association of Medical
  • Tackling health inequity for patients with Rett Syndrome

    Tackling health inequity for patients with Rett Syndrome

    ‘Reverse Rett recognises the inequities that people from minority backgrounds can face; through working
  • A different kind of form

    A different kind of form

    by Beth Johnsson Filling in forms is part of the parcel of parenting a

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