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We’re a charity dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

We’re a forward-thinking organisation, full of heart, positivity and optimism.

Not only do we raise funds for research into treatments and a cure, we connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

Funding research, finding hope

We fund research and forge connections between scientists, doctors and those affected by Rett, maintaining pressure and momentum for treatments and a cure.

Your investment has a direct impact.

Funds raised for or donated to Reverse Rett go directly to scientific and clinical research with tangible results.

Living with Rett Syndrome.

Practical information and resources to help keep children and adults with Rett Syndrome healthy until treatments and a cure become available.

Together we’ll deliver a cure.

We’re a dedicated team from the UK working in partnership with the US-based Rett Syndrome Research Trust. Together we will deliver a cure for Rett Syndrome in a timeframe which is meaningful for people living with the condition today.

Latest news

  • AveXis Gene Therapy Update

    AveXis Gene Therapy Update

    Released by RSRT on August 22nd 2019 Our community has been anxiously awaiting news
  • SAE Glasgow Film student raises awareness of Rett Syndrome with his documentary, Help Me Communicate 18 Jun 2019

    SAE Glasgow Film student raises awareness of Rett Syndrome with his documentary, Help Me Communicate 18 Jun 2019

    Jamie McDonald is a second year Digital Film Production student at SAE Glasgow, who
  • Edinburgh News: Linlithgow granddad cycles 185 miles across Outer Hebrides for charity

    Edinburgh News: Linlithgow granddad cycles 185 miles across Outer Hebrides for charity

    A caring granddad has returned from a gruelling 185-mile cycle ride across the Outer

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