We’re a charity dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

We’re a forward-thinking organisation, full of heart, positivity and optimism.

Not only do we raise funds for research into treatments and a cure, we connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

Funding research, finding hope

We fund laboratory and clinical research into Rett and MECP2 Duplication Syndrome, maintaining pressure and momentum for treatments and a cure.

Your support matters

Funds raised for or donated to Reverse Rett are quickly invested in our research projects so that they can make a difference to those living with Rett and MECP2D syndrome now.

Living with Rett Syndrome.

Practical information and resources to help keep children and adults with Rett Syndrome healthy until treatments and a cure become available.

Making change happen

Our dedicated team is small but national. We’re tightly focused on not only accelerating treatments and a cure for Rett, but ensuring those newly developed therapies are accessible to affected children and adults across the U.K.



Latest news

  • New publication from Prof. Santosh & team at CIPP Rett Centre

    In April, a paper entitled, Emotional Behavioural and Autonomic Dysregulation (EBAD) in Rett Syndrome
  • GrowCreate choose to support Reverse Rett because of Amber

    GrowCreate choose to support Reverse Rett because of Amber

    We are delighted that GrowCreate, a specialist website developer that builds results-focused websites for
  • “Mon Then!” Reverse Rett Beer now Available

    “Mon Then!” Reverse Rett Beer now Available

    Winton Brewery have been supporting Reverse Rett since 2017. They are an award winning

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