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Reverse Rett works with clinicians, researchers, and industry partners to accelerate access to emerging treatments for Rett syndrome in the UK. Through the Rett Registry UK, clinical development, and advocacy, we’re helping move new therapies from the lab to real lives.
Find out everything you need to know about the symptoms of Rett Syndrome, diagnosing the disorder, how to manage Rett and the current state of research.
Stay informed with practical information and resources which can help keep children and adults with Rett Syndrome as healthy as possible until treatments are approved.
At Reverse Rett, we receive no government funding. The families, friends and communities of children with Rett syndrome have raised 99% of funds which have led to current research progress. We need your help to continue our work.
Racing for Change
Reverse Rett accelerates treatments and a cure for Rett syndrome. Our small national team runs the Rett Registry UK, supports UK clinical trials, and works with clinicians, researchers, and industry to drive new therapies into lives faster.
