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We’re a charity dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

We’re a forward-thinking organisation, full of heart, positivity and optimism.

Not only do we raise funds for research into treatments and a cure, we connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

Funding research, finding hope

We fund research and forge connections between scientists, doctors and those affected by Rett, maintaining pressure and momentum for treatments and a cure.

Your investment has a direct impact.

Funds raised for or donated to Reverse Rett go directly to scientific and clinical research with tangible results.

Living with Rett Syndrome.

Practical information and resources to help keep children and adults with Rett Syndrome healthy until treatments and a cure become available.

Together we’ll deliver a cure.

We’re a dedicated team from the UK working in partnership with the US-based Rett Syndrome Research Trust. Together we will deliver a cure for Rett Syndrome in a timeframe which is meaningful for people living with the condition today.

 

 

Latest news

  • Easy ways to help

    Easy ways to help

    We all feel a little (a lot?) helpless right now. Eight months into a
  • Worldwide Walk in Sutton for Hannah

    Worldwide Walk in Sutton for Hannah

    By Beth Johnsson Every year we hold our ‘virtual walk’ for Rett Syndrome Awareness
  • Organic Features of Autonomic Dysregulation in Paediatric Brain Injury – Clinical and Research Implications for the Management of Patients with Rett Syndrome

    Organic Features of Autonomic Dysregulation in Paediatric Brain Injury – Clinical and Research Implications for the Management of Patients with Rett Syndrome

    In August, a paper entitled, Organic Features of Autonomic Dysregulation in Paediatric Brain Injury –

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