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We’re making change happen

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We’re a charity dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

We’re a forward-thinking organisation, full of heart, positivity and optimism. Not only do we raise funds for research into treatments and a cure, we connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

 

 

Funding research, finding hope

We fund research and forge connections between scientists, doctors and those affected by Rett, maintaining pressure and momentum for treatments and a cure.

Your investment has a direct impact.

Funds raised for or donated to Reverse Rett go directly to scientific and clinical research with tangible results.

Living with Rett Syndrome.

Practical information and resources to help keep children and adults with Rett Syndrome healthy until treatments and a cure become available.

Together we’ll deliver a cure.

We’re a dedicated team from the UK working in partnership with the US-based Rett Syndrome Research Trust. Together we will deliver a cure for Rett Syndrome in a timeframe which is meaningful for people living with the condition today.

Latest news

  • Reverse Rett Weekly Blog

    Reverse Rett Weekly Blog

    We produce a weekly blog to share what we’ve been up to, information from
  • ‘Cruel’ disease robbed little girl of speech and movement months after she learnt to walk and talk

    ‘Cruel’ disease robbed little girl of speech and movement months after she learnt to walk and talk

    Ben Stewart is fighting to raise funds for research into Rett Syndrome, a rare
  • Mapping clinical provision for children and adults with Rett Syndrome in the UK

    Mapping clinical provision for children and adults with Rett Syndrome in the UK

    Navigating the clinical care system for children and adults with Rett Syndrome in the

Working in partnership with...