Menu

We’re a charity dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

 

 

We’re a forward-thinking organisation, full of heart, positivity and optimism.

Not only do we raise funds for research into treatments and a cure, we connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

Funding research, finding hope

We fund laboratory and clinical research into Rett and MECP2 Duplication Syndrome, maintaining pressure and momentum for treatments and a cure.

Your support matters

Funds raised for or donated to Reverse Rett are quickly invested in our research projects so that they can make a difference to those living with Rett and MECP2D syndrome now.

Living with Rett Syndrome.

Practical information and resources to help keep children and adults with Rett Syndrome healthy until treatments and a cure become available.

Making change happen

Our dedicated team is small but national. We’re tightly focused on not only accelerating treatments and a cure for Rett, but ensuring those newly developed therapies are accessible to affected children and adults across the U.K.

 

 

Latest news

  • Help AMRC  #ResearchAtRisk

    Help AMRC #ResearchAtRisk

    Please help today as medical research affects every single one of us! The Association
  • Edinburgh Evening News: Father-of four to row across the Atlantic to raise money for the charity working to find a cure for his daughter’s disabling genetic disorder

    Edinburgh Evening News: Father-of four to row across the Atlantic to raise money for the charity working to find a cure for his daughter’s disabling genetic disorder

    Ross McKinney, a father-of-four from North Berwick is planning to row across the Atlantic
  • What a year! Thank you for standing with us

    What a year! Thank you for standing with us

    By Rachael Stevenson 2020 was the year no one could plan for. The virus

Working in partnership with...