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Reverse Rett Information, Advice & Resources

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We’re a charity dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

We’re a forward-thinking organisation, full of heart, positivity and optimism.

Not only do we raise funds for research into treatments and a cure, we connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

Funding research, finding hope

We fund research and forge connections between scientists, doctors and those affected by Rett, maintaining pressure and momentum for treatments and a cure.

Your investment has a direct impact.

Funds raised for or donated to Reverse Rett go directly to scientific and clinical research with tangible results.

Living with Rett Syndrome.

Practical information and resources to help keep children and adults with Rett Syndrome healthy until treatments and a cure become available.

Together we’ll deliver a cure.

We’re a dedicated team from the UK working in partnership with the US-based Rett Syndrome Research Trust. Together we will deliver a cure for Rett Syndrome in a timeframe which is meaningful for people living with the condition today.

 

 

Latest news

  • Leicestershire Live: Girl, 10, with rare 1 in 12,000 condition ‘making the most of life’

    Leicestershire Live: Girl, 10, with rare 1 in 12,000 condition ‘making the most of life’

    Georgia Wainwright is 10 years old and has been diagnosed with an extremely rare
  • Coronavirus: How can we help?

    Coronavirus: How can we help?

    Living with Rett Syndrome at any time is challenging. Coronavirus is making life much
  • Rett Syndrome and access to critical care during the COVID-19 crisis

    Rett Syndrome and access to critical care during the COVID-19 crisis

    Since Reverse Rett published this article on 24th March 2020, NICE have made some

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