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Reverse Rett is a patient advocacy and research organisation focused on delivering treatments and a cure for Rett Syndrome to everyone affected.

We’re dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

Not only do we fund laboratory and clinical research into treatments and a cure, we connect, empower and inform people whose lives have been impacted by this devastating condition.

Change is within reach

We fund laboratory and clinical research into Rett and MECP2 Duplication Syndrome, maintaining pressure and momentum for treatments and a cure.

Your support matters

We’re raising funds to fulfil both our ongoing U.K. clinical research commitment and the RSRT research program focused on next generation gene therapies. We can’t do it without you.

Living with Rett Syndrome.

Stay informed with practical information and resources which can help keep children and adults with Rett Syndrome as healthy as possible until we have effective treatments for the condition.

Making change happen

We’re focused on delivering treatments and a cure to children and adults with Rett Syndrome in the U.K. Our small but national team raises funds for research, supports clinical trials and manages the Rett Registry U.K.

 

 

Latest news

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    BBC NEWS: Waves roared like jet engines as we rowed the Atlantic

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    What can you do?

    January is always a time for looking forward and setting resolutions for the year
  • Understanding Health Inequalities for children and adults with Rett from minority backgrounds

    Understanding Health Inequalities for children and adults with Rett from minority backgrounds

    Everyone who cares about a child or adult with Rett Syndrome knows all too

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