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Reverse Rett is a patient advocacy and research organisation focused on delivering treatments and a cure for Rett Syndrome to everyone affected.

 

We’re dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

Not only do we fund laboratory and clinical research into treatments and a cure, we connect, empower and inform people whose lives have been impacted by this devastating condition.

Change is within reach

We fund laboratory and clinical research into Rett and MECP2 Duplication Syndrome, maintaining pressure and momentum for treatments and a cure.

Your support matters

We’re raising funds to fulfil both our ongoing U.K. clinical research commitment and the RSRT research program focused on next generation gene therapies. We can’t do it without you.

Living with Rett Syndrome.

Stay informed with practical information and resources which can help keep children and adults with Rett Syndrome as healthy as possible until we have effective treatments for the condition.

Making change happen

We’re focused on delivering treatments and a cure to children and adults with Rett Syndrome in the U.K. Our small but national team raises funds for research, supports clinical trials and manages the Rett Registry U.K.

 

 

Latest news

  • Hartlepool Mail: Hartlepool teenager to compete in junior darts world championship

    Hartlepool Mail: Hartlepool teenager to compete in junior darts world championship

    Callum Beddow was beating grown adults at darts when he was so small he
  • Sutton & Croydon Guardian: Sutton dad continues ‘tough’ challenge for Rett Syndrome

    Sutton & Croydon Guardian: Sutton dad continues ‘tough’ challenge for Rett Syndrome

    A father from Sutton has less than 40-days left of his 500-day run for
  • Change is within reach

    Change is within reach

    By Rachael Stevenson, CEO Reverse Rett Over the last couple of years, the Board

Working in partnership with...