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We’re a charity dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

We’re a forward-thinking organisation, full of heart, positivity and optimism.

Not only do we raise funds for research into treatments and a cure, we connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

Funding research, finding hope

We fund research and forge connections between scientists, doctors and those affected by Rett, maintaining pressure and momentum for treatments and a cure.

Your investment has a direct impact.

Funds raised for or donated to Reverse Rett go directly to scientific and clinical research with tangible results.

Living with Rett Syndrome.

Practical information and resources to help keep children and adults with Rett Syndrome healthy until treatments and a cure become available.

Together we’ll deliver a cure.

We’re a dedicated team from the UK working in partnership with the US-based Rett Syndrome Research Trust. Together we will deliver a cure for Rett Syndrome in a timeframe which is meaningful for people living with the condition today.

Latest news

  • The Northern Times: Family to join in walk initiative

    The Northern Times: Family to join in walk initiative

    A fancy dress fun walk is being held in Dornoch to raise money for
  • Belfast LIVE: Co Down mum on rare genetic disorder that stops daughter walking and talking

    Belfast LIVE: Co Down mum on rare genetic disorder that stops daughter walking and talking

    When Tara and Glenn Baine started to noticed their baby girl wasn’t reaching her
  • AveXis Gene Therapy Update

    AveXis Gene Therapy Update

    Released by RSRT on August 22nd 2019 Our community has been anxiously awaiting news

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