We fund laboratory and clinical research into treatments and a cure, run the Rett Registry UK, support UK clinical trials of emerging treatments and provide core funding for the CIPP Rett Centre based in London. Find out more about what we’ve accomplished in just 11 years on the link below.
Find out everything you need to know about the symptoms of Rett Syndrome, diagnosing the disorder and the current state of research here.
Stay informed with practical information and resources which can help keep children and adults with Rett Syndrome as healthy as possible until we have effective treatments for the condition.
We’re raising funds to fulfil both our ongoing U.K. clinical research commitment and RSRT projects focused on next generation cures for Rett Syndrome but we can’t do it without your support. There are so many different ways you can help, big and small.
We’re focused on delivering treatments and a cure to children and adults with Rett Syndrome. Our small but national team raises funds for research, supports clinical trials, manages the Rett Registry U.K., and works to facilitate and accelerate the drug development process in the UK.
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