Reverse Rett is a patient advocacy and research organisation focused on delivering treatments and a cure for Rett Syndrome to everyone affected.

We’re working to improve the lives of children, young people and adults with Rett Syndrome within the UK.

We fund laboratory and clinical research into treatments and a cure, run the Rett Registry UK, support UK clinical trials of emerging treatments and provide core funding for the CIPP Rett Centre based in London. Find out more about what we’ve accomplished in just 11 years on the link below.

Information about Rett Syndrome

Find out everything you need to know about the symptoms of Rett Syndrome, diagnosing the disorder and the current state of research here.

I am a parent or carer

Stay informed with practical information and resources which can help keep children and adults with Rett Syndrome as healthy as possible until we have effective treatments for the condition.

I want to help

We’re raising funds to fulfil both our ongoing U.K. clinical research commitment and RSRT projects focused on next generation cures for Rett Syndrome but we can’t do it without your support. There are so many different ways you can help, big and small.

Making change happen

We’re focused on delivering treatments and a cure to children and adults with Rett Syndrome. Our small but national team raises funds for research, supports clinical trials, manages the Rett Registry U.K., and works to facilitate and accelerate the drug development process in the UK.

Latest news

  • Clear about a cure

    Clear about a cure

    by Rachael Stevenson When Reverse Rett was founded back in 2010, it was not
  • How we can help with CIPP Rett Centre referral

    How we can help with CIPP Rett Centre referral

    The CIPP Rett Centre is a clinical treatment and research centre for children and
  • This week’s Trofinetide announcement

    This week’s Trofinetide announcement

    Much excitement has been generated across the UK Rett community this week due to the

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