Menu

We’re making change happen

Play

We’re a charity dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

We’re a forward-thinking organisation, full of heart, positivity and optimism.

Not only do we raise funds for research into treatments and a cure, we connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

Funding research, finding hope

We fund research and forge connections between scientists, doctors and those affected by Rett, maintaining pressure and momentum for treatments and a cure.

Your investment has a direct impact.

Funds raised for or donated to Reverse Rett go directly to scientific and clinical research with tangible results.

Living with Rett Syndrome.

Practical information and resources to help keep children and adults with Rett Syndrome healthy until treatments and a cure become available.

Together we’ll deliver a cure.

We’re a dedicated team from the UK working in partnership with the US-based Rett Syndrome Research Trust. Together we will deliver a cure for Rett Syndrome in a timeframe which is meaningful for people living with the condition today.

Latest news

  • Andy Stevenson to run London Marathon for Reverse Rett

    Andy Stevenson to run London Marathon for Reverse Rett

    A charity founder is set to run the London Marathon to mark his 50th
  • Sarizotan projected to be first approved treatment for Rett Syndrome

    Sarizotan projected to be first approved treatment for Rett Syndrome

    In this update from Newron Pharmaceuticals, sponsors of the STARS study, CEO Stefan Weber,
  • ‘Cruel’ disease robbed little girl of speech and movement months after she learnt to walk and talk

    ‘Cruel’ disease robbed little girl of speech and movement months after she learnt to walk and talk

    Ben Stewart is fighting to raise funds for research into Rett Syndrome, a rare

Working in partnership with...