We’re making change happen.

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We’re a charity dedicated to changing the lives of children and adults with Rett Syndrome. We believe change is not only possible, it’s within reach.

We’re a forward thinking organisation, full of heart, positivity and optimism. Not only do we raise funds for research into treatments and a cure, we connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

Funding research, finding hope

We fund research and forge connections between scientists, doctors and those affected by Rett, maintaining pressure and momentum for treatments and a cure.

Your investment has a direct impact.

Funds raised for or donated to Reverse Rett go directly to scientific and clinical research with tangible results.

Living with Rett Syndrome.

Practical information and resources to help keep children and adults with Rett Syndrome healthy until treatments and a cure become available.

Together we’ll deliver a cure.

We’re a dedicated team from the UK working in partnership with the US-based Rett Syndrome Research Trust. Together we will deliver a cure for Rett Syndrome in a timeframe which is meaningful for people living with the condition today.

Latest news

  • Sing-A-Long with The Beatles: 10th February 2019

    Sing-A-Long with The Beatles: 10th February 2019

    A Sing-A-Long-With the Beatles charity event will take place at Muswell Hill & Highgate
  • Cambridge Half Marathon: 3rd March 2019

    Cambridge Half Marathon: 3rd March 2019

    Join Team Reverse Rett in the Saucony Cambridge Half Marathon on 3rd March 2019.
  • Race Night – Edinburgh: 30th March 2019

    Race Night – Edinburgh: 30th March 2019

    There will be a Race Night in honour of Ellie on Saturday 30th March

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