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News

  • Why Knowing Your Child’s MECP2 Mutation Matters 

    At Reverse Rett, we’re currently reaching out to families of registered patients to make sure

  • Poems, art, stories — your voice belongs in our October Rett Awareness zine 

    Every October, the Rett community comes together to raise awareness, share stories, and shine

  • Bravo to our Summer fundraising heroes

    The Summer holidays is the quietest time of year at Reverse Rett. With children

  • Neurogene/FDA alignment on pivotal trial

    Following Neurogene’s update at the recent IRSF Scientific Meeting in Boston, the company has

  • Rod’s JOGLE Adventure for Sienna 

    Rodrigo Freeman recently took on the challenge of running the full length of the

  • Reverse Rett turns 15

    Last week Reverse Rett turned 15 years old! We have always been a forward

  • Bex Gone West captures LEAP

    We were thrilled to welcome our first-ever Artist in Residence to the Reverse Rett

  • Meet the Reverse Rett Trustees 

    Meet the dedicated Trustees behind Reverse Rett—the passionate parents, grandparent, professionals, and advocates driving

  • Encouraging update from Neurogene NGN-401 Gene Therapy Clinical Trial  

    At the 2025 IRSF Rett Syndrome Scientific Meeting in Boston last week (June 9-11,

  • The inspirational Mark ‘Mavis’ Reilly and his latest challenge

    Mark ‘Mavis’ Reilly is the king of brutal challenges. The former midfield enforcer for

  • Promising progress in the Taysha Gene Therapy trial reported in Boston

    On June 11, 2025, Taysha Gene Therapies shared an encouraging program update at the

  • What a Weekend in the Lakes

    The weather forecast for Cumbria looked grim from 10 days before our Reverse Rett