Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.

Just as they are? A Mother’s perspective

By Emily Marsden

"I wouldn't change her for anything"

Since Daisy was diagnosed with Rett Syndrome I have begun to notice a similar phrase or sentiment cropping up amongst parents of other girls with Rett or equally complex disorders. I recently...

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