Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.
Congratulations to Dr Santosh and colleagues at the Department of Child and Adolescent Psychiatry, King’s College London and the Centre for Interventional Paediatric Psychopharmacology and Rare Diseases (CIPPRD), Maudsley Hospital who have...
From L to R - Andy Stevenson, Neil Fowler and Gary Chambers
Former Warrington Wolves forward Gary Chambers has taken part in a 500-mile non-stop cycle, held to honour the daughter of an ex-police officer.
Chambers, a one-club man who featured for...
Polperro Fishermen's Choir with their President, Richard Madeley
By Andy Stevenson
Polperro Fishermen's Choir have been entertaining local and visitors to Cornwall since their formation in 1923. They provide the very best in traditional Cornish...
How to Host for a Cure:
Roadmap to a Cure is a comprehensive three-year strategic research plan which will take us closer to the cure for girls and women living with Rett Syndrome worldwide. But it can’t be carried out unless every family affected...
The first UK clinical trial for a potential treatment for Rett Syndrome was launched in March 2017 under the leadership of Dr Santosh at King's College Hospital in London.
The 24 week STARS study, sponsored by Newron Pharmaceuticals is being...
Guest blog post by Gael Gordon PhD.
This week for the first time, I appeared in the Sun. I would like to make it clear that this was never on my bucket-list but getting the news about Rett Syndrome sometimes means doing stuff like this. The...
Following Rhea Kara’s Pride of Britain award last November and the publicity she attracted, most of us are familiar with her story and with her passion for using her creative talents to fund research to help girls like her friend, Hannah. But what...
On Tuesday, April 18, the Exeter City Disabled Supporters Association hosted their tenth anniversary event at St James Park, with just over £800 being raised for the Reverse Rett charity.
ECDSA partners Exeter Nissan and Green My Business kindly...
Helping children with Rett through depression and anxiety
by Jennie Simmons
My daughter has many health professionals involved in her care. At different points in time, sometimes all together, we have had GP’s, social workers, school nurses,...
Former Exeter City midfielder Bertie Cozic will run this year's Exeter Marathon to raise money for Reverse Rett.
Rett Syndrome is a condition that is close to the popular Frenchman's heart, with his five-year-old daughter Lily Rose being afflicted...
