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  • Thoughts on the C-word

    By Rachael Stevenson, Co-Founder, Executive Director, Reverse Rett During #Rett Syndrome #Awareness month, some

  • Leighton Buzzard Online: Halloween fundraiser for brave Pitstone girl who was robbed of her ability to speak by Rett Syndrome

    A magnificent Halloween display which gets bigger and better each year is inviting trick-or-treaters

  • My Arctic Survival Challenge for Reverse Rett and Meningitis Now

    By Frank Synek My name is Frank and I am planning a one of

  • Nottinghamshire LIVE: Boxers get in the ring to raise awareness of Rett Syndrome

    Nottingham’s rising stars of boxing will get in the ring this weekend to raise

  • The Northern Times: Family to join in walk initiative

    A fancy dress fun walk is being held in Dornoch to raise money for

  • Belfast LIVE: Co Down mum on rare genetic disorder that stops daughter walking and talking

    When Tara and Glenn Baine started to noticed their baby girl wasn’t reaching her

  • AveXis Gene Therapy Update

    Released by RSRT on August 22nd 2019 Our community has been anxiously awaiting news

  • SAE Glasgow Film student raises awareness of Rett Syndrome with his documentary, Help Me Communicate 18 Jun 2019

    Jamie McDonald is a second year Digital Film Production student at SAE Glasgow, who

  • Edinburgh News: Linlithgow granddad cycles 185 miles across Outer Hebrides for charity

    A caring granddad has returned from a gruelling 185-mile cycle ride across the Outer

  • Lovesurf launches ‘Hope is my Superpower’ range

    Lovesurf is an ethical clothing and accessories brand based in North Berwick, Scotland. Mary-Clare

  • Accessing UK clinical trials for children and adults with Rett Syndrome

    Registering your child or adult with Rett Syndrome on the UK Rett Syndrome Patient

  • GW Research initiates a clinical trial of cannabidiol in Rett Syndrome in May 2019

    GWP42003-P (cannabidiol) is believed to affect several pharmacological pathways and may have the potential