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The Willow Foundation: Treats for adults with Rett!  Last month one of our Bitesize

Could you go without talking, texting or typing for 4 hours? How about 8

Last year we worked in partnership with Taysha Gene Therapies and other Rett patient

On May 18th 2022, Neurogene announced NGN-401, a new gene therapy candidate for Rett

A 20 strong team raising funds for a charity that has helped a young

On 29th March 2022, Taysha Gene Therapies announced that they have now received approval

A Woman finally pulled off her dream charity fundraiser after years of setbacks and

A rainbow bench has been unveiled in a Stockport park to remember a brave

by Andy Stevenson All parents love talking about their children. They are the most

by Andy Stevenson Raising money for a charity simply used to be walking around

This year, Rare Disease Day will take place on February 28th.  Rare Disease Day

Rare Disease Day 2022 will be held on February 28th. At Reverse Rett, this