Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.
It's not just doctors and clinical scientists who are leading the fight to bring treatments and cures closer. We spoke to Federico Fiori (centre above), a computational data analyst working in the Santosh clinic at King's College London. ...
A couple who spent more than three years trying for a baby will likely outlive their one-year-old son because he was born with a rare, life-shortening genetic disorder.
Charlie Walton, from Cheshire, has delayed development and could one day die of...
This weekend’s Harfest will include 23 family-friendly activities so that kids and adults can get a 'good taster' of all the different things that go on at the market.
Many of the activities added to this year’s event, such as the storytelling...
By Andy Stevenson
AmazonSmile launched in the UK in November 2017. Many of you have already signed up and chosen Reverse Rett as your benefitting charity, we recently had our first payment from them. It's a great way to raise money for Rett...
The annual Harfest music festival will return to Altrincham later this month and the full line-up has just been announced.
The stages are set to welcome acts including 6 Music DJ Mark Radcliffe’s Galleon Blast, Victor and Kyla Brox, Gondwana...
Hazel with her granddaughter, Lotta
By Hazel Beiny
It was 7 years ago when my beautiful granddaughter Lotta was diagnosed with Rett Syndrome. I know many of you will have had the same experience and will have benefited from the support and advice...
A Kidderminster author has launched a fundraiser to support a charity’s bid to find a cure for a rare disease that his granddaughter suffers from.
Nigel Gilbert is giving away copies of his books “History of Kidderminster” and “Harveys...
There have been a number of stories in the news recently about children whose families have been using cannabis-based treatments for epilepsy.
‘Cannabis-based treatments’ can mean a lot of different things.
As most people know, cannabis itself, is...
A SCHOOL worker has hailed the “amazing experience” of running a half-marathon.
Jane Livingstone took on the challenge at the Great Manchester Run earlier this year as part of a team running for Reverse Rett, the charity aiming to find a cure for...
By Rachael Stevenson, Co-Founder & Executive Director, Reverse Rett
Once again this week, UK charities are in the news for all the wrong reasons.
Aid charities who many of us have trusted and supported all our lives, such as Oxfam and Save the...
