Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.
It's that time of year again for one of the world’s six major marathon championships.
This Sunday it will be the 37th London Marathon, where the likes of Sir Mo Farah will be battling out with Ethiopia’s Kenenisa Bekele for first place in the Men’s...
An Open Letter to the authors of ‘A Perspective on “cure” for Rett Syndrome.’
From Reverse Rett – Reverse Rett is a UK medical research charity working to speed treatments and a cure for Rett Syndrome.
Dear Professor Clarke and Dr Ana...
Intelligence is a difficult thing to measure. While IQ tests have been heavily criticised over the last 30 years, society still sets much store by them. Health and education professionals’ decisions about what placements and interventions are...
March 2018
There had never been a clinical trial of a potential treatment for Rett Syndrome in the UK until the Sarizotan trial started at the Clinical Research Facility, King’s College Hospital in London last year.
The drug is being trialled...
'I hope everybody can learn that life is for living. We think we will do this in future and sometimes the future isn't guaranteed.'
It is a decade since Sara Meredith lost her beautiful daughter, Olivia, to the rare condition Rett Syndrome. Olivia...
By Dr. J Singh, MSc, PhD
How do we measure cognition? Typically, standardized tests which require verbal responses can be used. As a young child I had first-hand experience of these tests. My communication was severely limited and so I was exposed...
In June of 2017 AveXis announced that based on encouraging data generated by RSRT’s Gene Therapy Consortium it would advance the lead MECP2 gene therapy candidate toward clinical trials.
On 28th February 2018 the company provided an update on its...
By Rachael Stevenson
It’s International Rare Disease Day today and the theme this year is research. Research is important to anyone affected by a rare disease and anyone affected knows why. Only research will ultimately bring about treatments and...
We are delighted to announce that Reverse Rett is now a full member of the Association of Medical Research Charities (AMRC).
With a network of over 130 medical and health research charities supporting medical research in the UK, organisations...
A mother whose daughter died from a rare illness has told her story to raise awareness of the disease.
Sara Meredith, aged 41, from Walsall, teamed up with writer Andre Govier for the book about her late-daughter Olivia, who died from Rett syndrome...
