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  • Scoliosis in Rett syndrome: Repeat cancellations of essential operations in UK as a safeguarding concern.

    This article may be a difficult read for young or newly diagnosed families but

  • Why fundraising for Reverse Rett is still Vital

    2024 is already proving to be a promising year for the UK Rett Community

  • Choose Your Trek for Reverse Rett

    by Andy Stevenson This year we have three Reverse Rett team treks taking place,

  • Purple diamond logo with a sapling growing out of the tip
    Neurogene press release: Rapid enrolment and expansion

    Neurogene has published a press release today with an update to their Rett syndrome

  • Taysha Gene Therapies updates to Rett program TSHA-102

    Taysha Gene Therapies has announced several updates to the TSHA-102 program through a press

  • Oliver Freeman joins the Reverse Rett Board of Trustees

    We are delighted to welcome, Oly Freeman to the board of Trustees at Reverse

  • Can you Rise for Rett? 

    2024 is already proving to be an exciting year for the UK Rett Community with

  • My Top 10 Fundraising Tips 

    by Andy Stevenson I recently held my first fundraising workshop on Zoom. Titled ‘The

  • Two UK gene therapy trials for children with Rett syndrome cleared by UK regulator

    by Rachael Stevenson Last week, gene therapy companies Neurogene Inc and Taysha Gene Therapies

  • Taysha announcement: Key takeaways

    On 10 January 2024, Taysha Gene Therapies announced a press release sharing the news

  • Neurogene announcement: Key takeaways

    On 5 January 2024, Neurogene announced a business update and 2024 outlook. This news

  • The Big Give Christmas Challenge

    A huge thank you to everybody who helped us reach our target and more