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Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.

How and Why to swim the Channel

Sometime between the 13th and 20th August Naomi Vides will attempt to swim the English Channel. She is taking on this iconic challenge in honour of her sister, Nadya, who has Rett Syndrome and to raise money for a cure. Here she tells her story.

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How to Host for a Cure

How to Host for a Cure:

Roadmap to a Cure is a comprehensive three-year strategic research plan which will take us closer to the cure for girls and women living with Rett Syndrome worldwide. But it can’t be carried out unless every family affected...

Awakening

 

Guest blog post by Gael Gordon PhD.

This week for the first time, I appeared in the Sun.  I would like to make it clear that this was never on my bucket-list but getting the news about Rett Syndrome sometimes means doing stuff like this.  The...

Rhea’s Pride of Britain story continues

Following Rhea Kara’s Pride of Britain award last November and the publicity she attracted, most of us are familiar with her story and with her passion for using her creative talents to fund research to help girls like her friend, Hannah. But what...

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