Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.
A SCHOOL worker has hailed the “amazing experience” of running a half-marathon.
Jane Livingstone took on the challenge at the Great Manchester Run earlier this year as part of a team running for Reverse Rett, the charity aiming to find a cure for...
By Rachael Stevenson, Co-Founder & Executive Director, Reverse Rett
Once again this week, UK charities are in the news for all the wrong reasons.
Aid charities who many of us have trusted and supported all our lives, such as Oxfam and Save the...
One of the biggest names in modern British comedy has been announced as the headline act of a charity fundraiser in Stourbridge.
James Acaster will take to the stage at Stourbridge Town Hall in October as part of the ‘Stand-up for Daisy’ night of...
OpéRett founder, Amalric Gérard with two of the paintings auctioned for Rett research
We are very pleased to announce a new collaboration between Reverse Rett and OpéRett. We will be working in partnership with donations made in France being paid...
A group of cyclists are set to cover 400 miles on pedal power to raise £10,000 to boost research into a rare genetic condition.
Fiona and Andrew Walton’s son Charlie was diagnosed with MECP2 duplication syndrome in January.
The condition, which...
George Stannard, from Oulton Broad, will take the plunge later this week as he attempts to swim 21 miles across the English Channel to France.
Having swum competitively for Saint Felix School in Southwold and at Oxford when he began university, the...
By Andy Stevenson
Today, 12th July, Tim Adams and his friend, Steve, will begin the adventure of a lifetime.
They are taking part in the Mongol Rally is a 10,000 mile overland rally from the UK to Mongolia, finishing in Ulan-Ude in Siberia,...
A caring Coatbridge youngster ran an impressive 5k to raise money for charity after learning about his little sister’s rare genetic disorder.
James Traynor, eight, made his family proud by raising more than £2000 for Reverse Rett, a charity that...
Last Saturday's Family Fun Day at St James Park raised a HUGE £2000 for Charity.
The event saw the Junior Grecians, Exeter City Community Trust, the Supporters' Trust, Exeter City Football Club, and Supporters' Clubs come together to put on a day...
By Emily Marsden
"I wouldn't change her for anything"
Since Daisy was diagnosed with Rett Syndrome I have begun to notice a similar phrase or sentiment cropping up amongst parents of other girls with Rett or equally complex disorders. I recently...
