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Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.

Living like Livvy

Author and long time Reverse Rett supporter, Andre Govier has written a book about living with Rett Syndrome which is available to buy now with all proceeds being donated to Rett research.

Andre first heard about Rett Syndrome a number of years ago...

Thank you and Happy New Year!

 

As we come to the end of 2017, we’d like to thank all Reverse Rett supporters and fundraisers.

Through your efforts, there have been a number of highlights throughout the year. We’ve picked a few moments we’ll never forget to share with you and...

UK Rett Disorders Working Group update

By Rachael Stevenson

The UK Rett Disorders Working Group met on the 6th of December 2017 in Covent Garden, London. The group comprised of the following individuals:

Hilary Truss, Rachael Stevenson, Judith Sheppard, John Sharpe,  Becky Jenner (Rett...

Life, Rett, Etc: A Matter of Life and Death

By Rachael Stevenson

A lot of things scare me about Rett Syndrome but my number one fear is aspiration pneumonia.

This fear is not ungrounded. Lower respiratory tract infection is the most common cause of death in Rett Syndrome, followed by...

8th Reverse Rett London Gala

 

Our heartfelt appreciation goes to all who supported the Reverse Rett London Gala which was held at Church House, Westminster last Friday, November 3rd 2017.

We were overwhelmed by your generosity and willingness to help us give girls and women...

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