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  • The Boat Arrives and Training Continues…

    by Ross McKinney Less than 8 months from now, I’ll be rowing 3000 miles

  • Taysha Gene Therapies Statement on COVID-19 Vaccines

    Partners at Taysha Gene Therapies who plan to submit an investigational new drug (IND)

  • Just a load of Hope

    by Andy Stevenson I always find Beth’s  birthday difficult and emotional, I know many

  • LCFC.Com: It Means Everything To Georgia To Be Part Of The Leicester City Family

    Georgia, aged 10, has Rett Syndrome, a rare genetic disorder that affects brain development

  • Edinburgh Evening News: Seven-year-old girl smashes target and raises almost £3,000 for charity climbing North Berwick Law every day in February

    Seven-year-old Nina has climbed the 613ft hill in North Berwick 26 times so far,

  • Life in Lockdown: forgotten families

    by Beth Johnsson I was reluctant to write this. In these turbulent times, when

  • East Lothian Courier: Nina McKinney walking up North Berwick Law every day in February to help sister Eliza

    A seven year old schoolgirl has set herself the challenge of climbing North Berwick

  • In Your Area: Bereaved father raising funds for Manchester Road Park buddy bench in memory of his late son

    The father of a little boy who had a rare condition called Rett Syndrome

  • Boxer, Brad Daws shows his support for Georgia and Reverse Rett

    Carl Greaves Promotions have been supporting Reverse Rett for a few years now and

  • Run Jamie, Run

    Lots of people feel motivated to get into shape or improve their fitness as

  • Hasn’t the government already given £750 million to charities?

    #ResearchAtRisk questions answered. Not all charities were eligible for the government’s emergency funding in

  • Update: Novartis gene replacement program for Rett Syndrome, OAV201OAV201

    We’ve all been waiting for news regarding the Novartis gene replacement program for Rett