Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.

How to make the most of Amazon Smile

By Andy Stevenson


AmazonSmile launched in the UK in November 2017. Many of you have already signed up and chosen Reverse Rett as your benefitting charity, we recently had our first payment from them. It's a great way to raise money for Rett...

Calling all grandparents!

Hazel with her granddaughter, Lotta

By Hazel Beiny

It was 7 years ago when my beautiful granddaughter Lotta was diagnosed with Rett Syndrome. I know many of you will have had the same experience and will have benefited from the support and advice...

Cannabis based treatments: what’s happening now?

There have been a number of stories in the news recently about children whose families have been using cannabis-based treatments for epilepsy.

‘Cannabis-based treatments’ can mean a lot of different things.

As most people know, cannabis itself, is...

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