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  • Willow Foundation – great stuff for adults with Rett!

    The Willow Foundation: Treats for adults with Rett!  Last month one of our Bitesize

  • Speechless for Rett Syndrome

    Could you go without talking, texting or typing for 4 hours? How about 8

  • Taysha survey data presented in posters at IRSF Scientific Conference, Nashville in April 2022 

    Last year we worked in partnership with Taysha Gene Therapies and other Rett patient

  • New Rett gene therapy program announced by Neurogene

    On May 18th 2022, Neurogene announced NGN-401, a new gene therapy candidate for Rett

  • Stourbridge News: Stourbridge runners raise more than £6,000 for Reverse Rett

    A 20 strong team raising funds for a charity that has helped a young

  • Taysha Gene Therapy trial gets green light from Health Canada

    On 29th March 2022, Taysha Gene Therapies announced that they have now received approval

  • The Mail: Ball raises thousands at Cumbria Grand Hotel in Grange

    A Woman finally pulled off her dream charity fundraiser after years of setbacks and

  • Manchester World: Buddy Bench unveiled in Stockport Park in memory of toddler Jude Drinkwater, who died from Rett Syndrome

    A rainbow bench has been unveiled in a Stockport park to remember a brave

  • Tell One Person

    by Andy Stevenson All parents love talking about their children. They are the most

  • The Changing Face of Fundraising

    by Andy Stevenson Raising money for a charity simply used to be walking around

  • Rare Disease Day: Why it matters and what you can do to help.

    This year, Rare Disease Day will take place on February 28th.  Rare Disease Day

  • I am rare. I am registered.

    Rare Disease Day 2022 will be held on February 28th. At Reverse Rett, this