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  • Taysha Letter to the Rett Syndrome Community

    June 5, 2023 Dear Rett Community, Today, Taysha announced that the first patient was

  • TAYSHA GENE THERAPIES ANNOUNCES FIRST PATIENT DOSED WITH TSHA-102 IN THE REVEAL PHASE 1/2 TRIAL UNDER INVESTIGATION FOR THE TREATMENT OF RETT SYNDROME

    Taysha Gene Therapies have announced today that the very first patient with Rett Syndrome

  • Daily Record: Kilmarnock hero Mark Reilly puts life into words as book to raise funds for important charity

    A Kilmarnock cup-winning hero has put his life into words.  Mark Reilly has this week

  • ARMAGHi: Portadown couple hopeful of cure for daughter with rare disease

    A Portadown couple whose daughter was born with a rare, neurological condition say that despite many

  • Martynka conquers the Crown of Polish Mountains for Reverse Rett

    It’s always amazing to see people with Rett Syndrome taking on fundraising challenges rather

  • Recruitment 

    Over the last six weeks we’ve been working to recruit an Operations Manager for

  • Reverse Rett London Gala, November 10th 2023, New venue 

    This year we’re mixing up the London Gala and holding it at a new

  • Glasgow Kiltwalk 

    On April 30th Emilia’s Tartan Army descended on Glasgow to take part in the

  • Jurassic Juggernauts smash the Jurassic Coast 

    Last Saturday, a team of 14 determined Dads, brothers, cousins, uncles and lifelong friends

  • UK Parent / Caregiver Gene Therapy Survey 

    Last month we helped a gene therapy company to deliver a UK survey of

  • Understanding the Rett Registry UK and the Clinical Trial Process

    Reverse Rett has been providing clinical trial recruitment and support services since the first

  • Neurogene letter to the Rett Syndrome Community

    Dear Rett Syndrome Community, Earlier this year Neurogene shared that the FDA cleared our