• Belfast LIVE: Co Down mum on rare genetic disorder that stops daughter walking and talking

    When Tara and Glenn Baine started to noticed their baby girl wasn’t reaching her

  • AveXis Gene Therapy Update

    Released by RSRT on August 22nd 2019 Our community has been anxiously awaiting news

  • SAE Glasgow Film student raises awareness of Rett Syndrome with his documentary, Help Me Communicate 18 Jun 2019

    Jamie McDonald is a second year Digital Film Production student at SAE Glasgow, who

  • Edinburgh News: Linlithgow granddad cycles 185 miles across Outer Hebrides for charity

    A caring granddad has returned from a gruelling 185-mile cycle ride across the Outer

  • Lovesurf launches ‘Hope is my Superpower’ range

    Lovesurf is an ethical clothing and accessories brand based in North Berwick, Scotland. Mary-Clare

  • Accessing UK clinical trials for children and adults with Rett Syndrome

    Registering your child or adult with Rett Syndrome on the UK Rett Syndrome Patient

  • GW Research initiates a clinical trial of cannabidiol in Rett Syndrome in May 2019

    GWP42003-P (cannabidiol) is believed to affect several pharmacological pathways and may have the potential

  • Quadrant2Design support Reverse Rett again

    Exhibition Stand Designers Quadrant2Design have chosen to support Reverse Rett by donating three pull

  • Enjoy the Great British Outdoors and help fund Rett research too!

    You may have heard us say, on more than one occasion, that the wonderful

  • MECP2 Duplication: research progress

    Amazing progress in MECP2 Duplication Syndrome research has made a cure a realistic possibility.

  • Andy Stevenson to run London Marathon for Reverse Rett

    A charity founder is set to run the London Marathon to mark his 50th

  • Sarizotan projected to be first approved treatment for Rett Syndrome

    In this update from Newron Pharmaceuticals, sponsors of the STARS study, CEO Stefan Weber,