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News

  • Taysha Gene Therapies Announces Second Patient Dosed with TSHA-102 in the REVEAL Phase 1/2Adult Trial for the Treatment of Rett Syndrome

    Yesterday, Taysha Gene Therapies announced that a 2nd adult patient has been dosed with

  • East Lothian Courier: Mums taking on Kilimanjaro challenge for Rett Syndrome charity

    A group of county women have set their sights on Africa’s tallest mountain as

  • Count me in: We need your Help during Rett Syndrome Awareness Month

    October is Rett Syndrome Awareness Month and we need your help. Can we count

  • Reverse Rett Big Give: Is change possible?

    Those who have been around in the Rett community for a few years will

  • Norwich Evening News: Spixworth woman’s experience living with rare Rett Syndrome

    A local mum is trying to spread awareness of a disease that has left

  • 1ST RETT GENE THERAPY PATIENT SHOWING SIGNIFICANT IMPROVEMENT

    We are pleased to share that initial data from the first adult patient with

  • Taysha Gene Therapies announcement

    Exciting news for Rett Families everywhere. Taysha Gene Therapies have announced today that the

  • Neurogene and Neoleukin Announce Merger Agreement

    Neurogene have announced that they will be merging with Neoleukin. This does not change

  • Does your child have a positive MECP2 mutation?

    With gene therapy clinical trials approaching, it’s more important than ever that we are

  • CIPP Rett Centre Urgent Appeal

    This is an urgent appeal for funding to keep the CIPP Rett Centre, a

  • Meet our new Operations Manager

    Reverse Rett: small team, big job. Meet the new Operations Manager who will help

  • Do you live in or around London or the South East?

    If so, we need your help with the Annual London Gala. The Gala is