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  • The inspirational Mark ‘Mavis’ Reilly and his latest challenge

    Mark ‘Mavis’ Reilly is the king of brutal challenges. The former midfield enforcer for

  • Promising progress in the Taysha Gene Therapy trial reported in Boston

    On June 11, 2025, Taysha Gene Therapies shared an encouraging program update at the

  • What a Weekend in the Lakes

    The weather forecast for Cumbria looked grim from 10 days before our Reverse Rett

  • Taysha update May 2025

    On 28 May 2025, Taysha Gene Therapies announced updates to its TSHA-102 Rett syndrome

  • Rett Registry UK: Visibility, opportunity and progress 

    Reverse Rett first launched the Rett Registry UK in 2014, not quite scribbled on

  • Taysha Gene Therapies Update 15 May 2025 

    On 15 May 2025, Taysha Gene Therapies published a press release with updates to

  • Can You Help Us Open Doors? 

    For a small charity, focusing on a rare disease, getting our foot in the

  • Meet the Reverse Rett Team 

    Rachael Stevenson CEO, Co-Founder, Reverse Rett  Rachael Stevenson is the Co-Founder and CEO of

  • Reverse Rett Marathon Runners

    The London Marathon is one of the world’s greatest and most popular Marathons. It

  • Empty spaces and unwanted freedom: When caring comes to an end – Special Needs Jungle

    By Catriona Moore The loss begins to hit at about 3.30pm on weekdays. That’s

  • Rodrigo’s JOGLE Adventure for Sienna

    Rodrigo Freeman is running from John O’Groats to Land’s End next month for Reverse

  • Living with Rett: A Mother’s Raw Reflection

    By Megan Thorne I’ve been struggling lately with managing and balancing my fears surrounding