The Reverse Rett Podcast

Welcome to the Reverse Rett Podcast. Through the podcast, we want to share the stories of families and carers of many different backgrounds, to show how different people manage their lives. We’ll also be interviewing doctors and researchers working in the field to help unpick the science and unlock strategies that can help all of us and our people with Rett, live as healthy a life as possible.

‘2020 has been a difficult year for all of us, especially those who are trying to protect someone with a rare disease and manage the often overwhelming responsibility of caring for them at the same time. In this time where we are all consistently ‘connected’ but increasingly disconnected, we hope the podcast gives listeners insight into the lives of families who love someone with Rett and where needed, a sense of solidarity in this challenging time.’


Rachael Stevenson, Co-founder/Executive Director of Reverse Rett

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Most people have never heard of Rett Syndrome.

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