‘The last 12 months has been a difficult and isolating time for all of us, especially for those who are trying to protect someone with a rare disease and manage the often overwhelming responsibility of caring for them at the same time. In this time where we are all consistently ‘connected’ but increasingly disconnected, we hope the podcast gives listeners insight into the lives of families who love someone with Rett and where needed, a sense of solidarity throughout these challenging days.’
Rachael Stevenson, Co-founder/Executive Director of Reverse Rett
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Spreading awareness and delivering treatments for a rare disease like Rett is a real challenge.
Most people have never heard of Rett Syndrome.
If the podcast resonates with you, please share it with a family member or friend who you think could benefit from listening.
This project has philanthropic support from the Pears Foundation, for frontline organisations and their communities, and is funded as part of Government’s £750m charities package.
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