‘2020 has been a difficult year for all of us, especially those who are trying to protect someone with a rare disease and manage the often overwhelming responsibility of caring for them at the same time. In this time where we are all consistently ‘connected’ but increasingly disconnected, we hope the podcast gives listeners insight into the lives of families who love someone with Rett and where needed, a sense of solidarity in this challenging time.’
Rachael Stevenson, Co-founder/Executive Director of Reverse Rett
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Spreading awareness and delivering treatments for a rare disease like Rett is a real challenge.
Most people have never heard of Rett Syndrome.
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